by Amanda Case
It is hard to believe that it has been 6 1/2 years since we first received our daughter’s diagnosis of hearing loss. I still remember the fear that washed over me, suddenly feeling unequipped to be her mom. I had never known a Deaf person, I didn’t know ASL, what do we do next?
At age three, we had her fitted for her first hearing aid, enrolled her in the Special Education Preschool in our district, and met with an ENT and geneticist to see if we could see what was causing her hearing loss. Just as we were settling in to our “new normal,” we found out our daughter has Pendred Syndrome, which is characterized by progressive hearing loss and possible Goiter that presents in early adulthood.
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By Rosabel O. Agbayani, MPH
“If you want to change the world, go home and love your family.” -Mother Theresa
Sometimes we think that in order to make change we have to make a lot of noise. What I have learned from my experience of raising my children, and especially raising my deaf child, is that you have to be able to drown out the noise and listen to your heart.
We found out my son was deaf in September 2010. I’m not sure why I was so shocked because after almost 6 months of testing we finally had an answer. But I still remember that feeling when I heard the words “Your son has a hearing loss.”
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