By Kristen Stratton, California Hands & Voices
Even with my own hearing loss, I am still working on feeling worthy enough to use an interpreter. For my son, I don’t feel the need to justify any of his access needs.
~The Stratton Trio
I have spent a lifetime trying to figure out where I fit in as a hard of hearing person in a hearing world. I grew up in a family with a strong history of hearing loss but without the richness of language or culture; that seemed reserved for only those who were truly deaf. I didn’t know “Deaf” as compared to “deaf”. I didn’t know about the world beyond mine that had a full and complete language which was as beautiful as it was intricate and complex. I didn’t know anything until I became the mother of a Deaf child.
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by Amanda Case
It is hard to believe that it has been 6 1/2 years since we first received our daughter’s diagnosis of hearing loss. I still remember the fear that washed over me, suddenly feeling unequipped to be her mom. I had never known a Deaf person, I didn’t know ASL, what do we do next?
At age three, we had her fitted for her first hearing aid, enrolled her in the Special Education Preschool in our district, and met with an ENT and geneticist to see if we could see what was causing her hearing loss. Just as we were settling in to our “new normal,” we found out our daughter has Pendred Syndrome, which is characterized by progressive hearing loss and possible Goiter that presents in early adulthood.
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