#TogetherThursday is a weekly resource blog that was created by CA Hands & Voices Advisory Board Member Leslie Manjarrez out of the early shelter in place period.

This blog is tailored to highlight free resources and topics to parents of Deaf/Hard of Hearing children through videos, articles, links to further reading, activities and more. #TogetherThursday has grown to feature monthly themes that have included Deaf Awareness, School Readiness, Deaf LGBTQ+, and Seasonal DHH supports.

Please reach out to suggest future topics, resources and individuals to feature! Contact us: IG/FB or email.

Ms. Leslie looks forward to hearing from you!

Stories of DHH Adults

Stories are powerful. If done well, stories not only entertain but they also teach us. This form of storytelling is called “narrative”. We are all wired for narrative; it is what connects us to one another.

Deaf and Hard of Hearing (DHH) individuals with diverse languages, modes of communication, ages, education, and life experiences play an important role in the journey for families with children who are DHH. Knowing the tremendous value of narrative, California Hands & Voices conducted written interviews with DHH adults for families to explore each unique journey and benefit from the wealth of knowledge told through their stories.

You may find while reading these narratives, your thoughts take you in a direction different from the rest of the story. We may suggest that you stay with that thought, for it is that part of the story that will teach you something new about yourself. This is the power of story.

A note of appreciation. This important resource would not be available if it were not for Deaf and Hard of Hearing adults who agreed to share their experiences. Thank you for making a positive impact on the life of every family who will read your story. The interviews give families access to the wide range of opportunities available for their child. We thank you.

Hands & Voices FL3 DHH Adults Hands & Voices Blog

“Follow your instincts. That’s where true wisdom manifests itself.”

Oprah Winfrey
Alysa with family

Living with TCS

Alysa was born with TCS, and bilateral Microtia-Atresia. Treacher Collins Syndrome is a rare genetic condition that affects the way the face develops; it is estimated that it occurs in approximately 1 in 50,000 live births. Microtia is a birth defect that occurs 1 in 10,000 live births, and Atresia is absence or underdevelopment of the ear canal and middle ear structures. She has had over 9 surgeries, years of orthodontics, and speech therapy in school. She has moderate to severe hearing loss and wears bilateral bone-anchored hearing aids.