Alysa with family

Living with TCS

Alysa was born with TCS, and bilateral Microtia-Atresia. Treacher Collins Syndrome is a rare genetic condition that affects the way the face develops; it is estimated that it occurs in approximately 1 in 50,000 live births. Microtia is a birth defect that occurs 1 in 10,000 live births, and Atresia is absence or underdevelopment of the ear canal and middle ear structures. She has had over 9 surgeries, years of orthodontics, and speech therapy in school. She has moderate to severe hearing loss and wears bilateral bone-anchored hearing aids.

Sign for Silly in ASL

Bringing ASL Home for Families

Razi M. Zarchy, MS, CCC-SLP and Leah C. Geer, PhD

Our names are Razi Zarchy and Leah Geer. Razi is a hearing speech-language pathologist (SLP) with over 10 years of experience in deaf education. Leah is a deaf Associate Professor of Deaf Studies at California State University, Sacramento. She has 10 years of experience teaching American Sign Language (ASL). Together, we wrote the innovative, family-centered curriculum called ASL at Home. This is our story.

Marie

Finding Identity: Life with Kacey

By Marie Morgan, California H&V

I will always remember the day that I drove away from the hospital with my newborn knowing that she just failed the hearing test again and had a high likelihood of a mild to moderate loss. I looked at her, thrilled to be taking a baby home after suffering a loss two years prior. I knew that she would have to deal with this hearing loss her whole life, but I wouldn’t let it define her and I most certainly would make it her super power. That is exactly what I have tried to do every day since.